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image: Funders Fight Re-Identification

Funders Fight Re-Identification

By | March 25, 2014

Four UK research funding agencies firm up their stance against deliberate attempts by researchers to re-identify supposedly anonymous study participants.

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image: Proceed with Caution

Proceed with Caution

By | October 1, 2013

While genomic data sharing is essential for research, scientists must work to keep sensitive, potentially damaging information under wraps.

1 Comment

image: Debating Bioethics Openly

Debating Bioethics Openly

By | July 1, 2013

Researchers and bioethicists need to take advantage of events such as the recent publication of the HeLa genome to engage the public on topics of privacy, biobank regulation, and more.

3 Comments

image: Speaking of Science

Speaking of Science

By | July 1, 2013

July 2013's selection of notable quotes

3 Comments

image: Nordic Gene Study Requires Consent

Nordic Gene Study Requires Consent

By | June 24, 2013

A company has been ordered to stop estimating Icelanders’ genotypes and linking them to hospital records.

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image: “Anonymous” Genomes Identified

“Anonymous” Genomes Identified

By | May 3, 2013

The names and addresses of people participating in the Personal Genome Project can be easily tracked down despite such data being left off their online profiles.

2 Comments

image: Privacy and the HeLa Genome

Privacy and the HeLa Genome

By | March 26, 2013

European scientists have taken down the HeLa genome after publishing it without the consent of Henrietta Lacks’s family.

6 Comments

image: Bad Blood

Bad Blood

By | February 20, 2013

US scientists struggle to complete studies in Ecuador in the wake of biopiracy accusations.

2 Comments

image: Some Insurers Protected by GINA

Some Insurers Protected by GINA

By | January 23, 2013

Long-term, life, and disability insurers may still be able to deny coverage to patients with a genetic disease, under current nondiscrimination legislation.

2 Comments

image: Preventing Genetic Identity Theft

Preventing Genetic Identity Theft

By | October 11, 2012

A new report lays out the pitfalls of consumer genetics and suggested strategies for safeguarding DNA’s privacy.  

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