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» genetic privacy

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image: Microbiome Fingerprints

Microbiome Fingerprints

By | May 11, 2015

Researchers identify people by the unique combinations of microbes found in and on their bodies.

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image: NIH Issues Genomic Data Sharing Rules

NIH Issues Genomic Data Sharing Rules

By | August 28, 2014

Updated guidelines expand upon existing policy to include more kinds of data. 

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image: Funders Fight Re-Identification

Funders Fight Re-Identification

By | March 25, 2014

Four UK research funding agencies firm up their stance against deliberate attempts by researchers to re-identify supposedly anonymous study participants.

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image: Proceed with Caution

Proceed with Caution

By | October 1, 2013

While genomic data sharing is essential for research, scientists must work to keep sensitive, potentially damaging information under wraps.

1 Comment

image: Debating Bioethics Openly

Debating Bioethics Openly

By | July 1, 2013

Researchers and bioethicists need to take advantage of events such as the recent publication of the HeLa genome to engage the public on topics of privacy, biobank regulation, and more.

3 Comments

image: Speaking of Science

Speaking of Science

By | July 1, 2013

July 2013's selection of notable quotes

3 Comments

image: Nordic Gene Study Requires Consent

Nordic Gene Study Requires Consent

By | June 24, 2013

A company has been ordered to stop estimating Icelanders’ genotypes and linking them to hospital records.

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image: “Anonymous” Genomes Identified

“Anonymous” Genomes Identified

By | May 3, 2013

The names and addresses of people participating in the Personal Genome Project can be easily tracked down despite such data being left off their online profiles.

2 Comments

image: Privacy and the HeLa Genome

Privacy and the HeLa Genome

By | March 26, 2013

European scientists have taken down the HeLa genome after publishing it without the consent of Henrietta Lacks’s family.

6 Comments

image: Bad Blood

Bad Blood

By | February 20, 2013

US scientists struggle to complete studies in Ecuador in the wake of biopiracy accusations.

2 Comments

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