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image: Proceed with Caution

Proceed with Caution

By | October 1, 2013

While genomic data sharing is essential for research, scientists must work to keep sensitive, potentially damaging information under wraps.

1 Comment

image: Consent at Last

Consent at Last

By | September 18, 2013

A working group including members of the Lacks family approves the first projects to use the HeLa genome.

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image: Q&A: NIH Brokers HeLa Genome Deal

Q&A: NIH Brokers HeLa Genome Deal

By | August 7, 2013

Officials at the government agency hammer out an agreement with the Lacks family to provide restricted access to genomes of their relative’s unwittingly donated cells.

5 Comments

image: Debating Bioethics Openly

Debating Bioethics Openly

By | July 1, 2013

Researchers and bioethicists need to take advantage of events such as the recent publication of the HeLa genome to engage the public on topics of privacy, biobank regulation, and more.

3 Comments

image: Privacy and the HeLa Genome

Privacy and the HeLa Genome

By | March 26, 2013

European scientists have taken down the HeLa genome after publishing it without the consent of Henrietta Lacks’s family.

6 Comments

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