House Bill Could Help Employers Dodge GINA

HR 1313 could circumvent protections offered by the Genetic Information Nondiscrimination Act, enabling employers to incentivize employee sharing of genetic and other medical information.

By Joshua A. Krisch | March 13, 2017

i124NEWS.TVThe Genetic Information Nondiscrimination Act (GINA) prohibits US employers and health insurance companies from making decisions based on the results of genetic screenings, with several exceptions. If employees voluntarily submit their genetic information as part of a workplace wellness program, for instance, they are not protected by GINA. But employers must not coerce workers into doing so.

Now, House Republicans have approved HR 1313, a bill that, if enacted, would remove at least one of GINA’s protections: essentially, it would allow employers to pressure workers into submitting their genetic information to the company in exchange for up to 30 percent reductions in health insurance costs. Once employees have submitted their information (voluntarily, as part of a workplace wellness program), few of GINA’s protections would apply.

“What this bill would do is completely take away the protections of existing laws,” Jennifer Mathis of the Bazelon Center for Mental Health Law told STAT News. GINA and similar legislation “would be pretty much eviscerated,” she added.

See: "Protecting Patients from Genetic Discrimination"

The American Academy of Pediatrics and nearly 70 other organizations have drafted a letter opposing the bill, which has been passed along to the House Ways and Means Committee and has yet to be considered by the Senate. “We strongly oppose any legislation that would allow employers to inquire about employees’ private genetic information or medical information unrelated to their ability to do their jobs, and to impose draconian penalties on employees who choose to keep that information private,” the organizations wrote.

Supporters of the bill argue that GINA and other federal nondiscrimination laws impose so many regulations on workplace wellness programs that it is difficult for employers to implement them. Wellness programs can decrease the costs of health care through gym discounts and other incentives for employees who maintain healthy lifestyles. HR 1313 “is trying to streamline the regulatory scheme,” Kathryn Wilber of the American Benefits Council told The New York Times.

Add a Comment

Avatar of: You



Sign In with your LabX Media Group Passport to leave a comment

Not a member? Register Now!

LabX Media Group Passport Logo


Avatar of: Paul Stein

Paul Stein

Posts: 237

March 13, 2017

This is the first step in firing employees once their genetic markers indicate when a particular costly malady might soon kick in.  It will be done when poor performance reviews show up a couple of times in a row, inexplicably to the employee.  With appropriate documentation to legally cover themselves, to save that all important insurance money, companies will institute this.

Avatar of: Interested


Posts: 8

March 18, 2017

Indeed a reduction in insurance cost will intice many a person to supply their genetic information which will inevitably leave many a person uninsured as soon as, as noted below, the company decides they cannot afford a person with a potential (potential being the working word) disease.  This is termed "profiling in the genetic age."  And to be evaluated is whether a disease as a result of genetic sequencing should not be considered a "pre-existing condition."  Unfortunate lack of progressive thought in the Trump administration.

Popular Now

  1. Could Rapamycin Help Humans Live Longer?
  2. Renowned Physicist Stephen Hawking Dies
  3. John Sulston, Human Genome Project Leader, Dies
  4. Pupil Response to an Optical Illusion Tied to Autistic Traits