Researchers say the new NIH policy announced last week for sharing data from genome-wide association studies will increase interest in studies linking genotypes to diseases while securing the anonymity of study participants. However, some raised concerns about the specifics of the plan. "The basic idea is to make broadly available to the scientific community a lot of these detailed and expensive-to-get data," Howard Edenberg, director of Indiana University School of Medicine's Center for Medical Genomics, told The Scientist. "That, I think, is a worthy goal."The policy, to take affect next January, establishes a centralized repository at the National Library of Medicine's National Center for Biotechnology Information to which NIH-funded researchers working on genome-wide association studies (GWAS) must submit their data. It also sets guidelines for protecting research participant identities, publishing studies that utilize shared data, and securing intellectual property rights for researchers submitting data. A draft version...
Francis CollinsThe ScientistPablo GejmanstudiesThe ScientistLaura ScottThe ScientistThe Scientistmail@the-scientist.comEditor's note: A previous version of this article left out Pablo Gejman's affiliation with Evanston Northwestern Healthcare. The oversight has been corrected.The Scientisthttp://www.the-scientist.com/blog/display/53549/http://genomics.iupui.edu/EdenbergLab/home.htmlhttp://grants.nih.gov/grants/guide/notice-files/NOT-OD-07-088.htmlThe Scientisthttp://www.the-scientist.com/news/display/25033/The Scientisthttp://www.the-scientist.com/article/display/23067/http://www.northwestern.edu/nuin/fac/gejman.htmhttp://www.the-scientist.com/pubmed/16400611http://www.sph.umich.edu/iscr/faculty/profile.cfm?uniqname=ljst
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