Globalization may be a major contributor to the ongoing international economic crisis, but it is also promoting international collaboration and uniting people around the world in common cause. A proof of this is Rare Disease Day 2009, which takes place on Saturday, 28th February, with an international participation of thousands of patients and an impact on awareness of rare diseases that will be immeasurable. Illustrating the opportunity to raise awareness with policy makers, the European Union Commissioner for Health, Androulla Vassiliou, will host an event on Rare Disease Day to launch the publication of a book, The Voice of 12,000 patients -- Experiences and Expectations of Rare Disease Patients on Diagnosis and Care in Europe. This is one of dozens of events taking place across the world. (For information, go to linkurl:www.rarediseaseday.org.);http://www.rarediseaseday.orgRare diseases by definition affect less than 1 in 2000 people. They are a diverse group of 6000...
Yann Le Cam is Chief Executive Officer of linkurl:EURORDIS,;http://www.eurordis.org the European Organisation of Rare Diseases.
Interested in reading more?
Become a Member of
Receive full access to more than 35 years of archives, as well as TS Digest, digital editions of The Scientist, feature stories, and much more!
Already a member?