funding, evolution, policy
Understanding What Makes a Successful Crowdfunding Campaign
Understanding What Makes a Successful Crowdfunding Campaign
Jim Daley | May 1, 2018
Researchers at the Rare Genomics Institute look at how families finance the cost of diagnostic exome sequencing.
Book Excerpt from <em>The Power of Rare</em>
Book Excerpt from The Power of Rare
Victoria Jackson, Michael Yeaman | May 1, 2018
In chapter 4, “Building a Cure Machine,” author Victoria Jackson reveals the challenges in launching a foundation focused on funding research on a rare disease.
Ali&rsquo;s Journey
Ali’s Journey
The Scientist Staff | May 1, 2018
Ali Guthy, the daughter of cosmetics entrepreneur Victoria Jackson, discusses NMO, the rare autoimmune disease she suffers from.
How Orphan Drugs Became a Highly Profitable Industry
How Orphan Drugs Became a Highly Profitable Industry
Diana Kwon | May 1, 2018
Government incentives, advances in technology, and an army of patient advocates have spun a successful market—but abuses of the system and exorbitant prices could cause a backlash.
Infographic: Rare Disease by the Numbers
Infographic: Rare Disease by the Numbers
The Scientist Staff | May 1, 2018
How rare conditions and research spending on them compare with more common diseases.
EU States Vote to Ban Neonicotinoids
EU States Vote to Ban Neonicotinoids
Diana Kwon | Apr 27, 2018
The pesticides, which studies show are harmful to bees, will be prohibited in open fields by the end of 2018.
Marine Biologist Susan Williams Dies
Marine Biologist Susan Williams Dies
Diana Kwon | Apr 26, 2018
The UC Davis researcher was an advocate of ocean conservation and science communication.
Fungus Repurposed a Bacterial Gene to Sense Gravity with Crystals
Fungus Repurposed a Bacterial Gene to Sense Gravity with Crystals
Viviane Callier | Apr 24, 2018
Rather than getting a gene for its original function, a horizontal gene transfer provides the raw material for evolutionary innovation.
Opinion: “Drug Sanctuaries” Offer Hope to a Post-Antibiotic World
Opinion: “Drug Sanctuaries” Offer Hope to a Post-Antibiotic World
Rees Kassen | Apr 24, 2018
Drug-free environments, such as a designated ward in a hospital, might reduce the strength of selection for resistance.
Study: Winning an Early-Career Research Grant Begets More Funding
Study: Winning an Early-Career Research Grant Begets More Funding
Shawna Williams | Apr 23, 2018
The relationship is independent of grantees’ scientific accomplishments.