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Book Excerpt from
The Power of Rare
Victoria Jackson, Michael Yeaman | May 1, 2018
In chapter 4, “Building a Cure Machine,” author Victoria Jackson reveals the challenges in launching a foundation focused on funding research on a rare disease.
How Orphan Drugs Became a Highly Profitable Industry
Diana Kwon | May 1, 2018
Government incentives, advances in technology, and an army of patient advocates have spun a successful market—but abuses of the system and exorbitant prices could cause a backlash.
Infographic: Rare Disease by the Numbers
Staff | May 1, 2018
How rare conditions and research spending on them compare with more common diseases.
EU States Vote to Ban Neonicotinoids
Diana Kwon | Apr 27, 2018
The pesticides, which studies show are harmful to bees, will be prohibited in open fields by the end of 2018.
Marine Biologist Susan Williams Dies
Diana Kwon | Apr 26, 2018
The UC Davis researcher was an advocate of ocean conservation and science communication.
EPA Seeks to Restrict the Science Used in Policymaking
Kerry Grens | Apr 23, 2018
Republican politicians have been trying to limit data to only those publicly available, but opponents say that would neglect private, yet important, information.
Jim Bridenstine Confirmed to Lead NASA
Kerry Grens | Apr 19, 2018
The US Senate narrowly approved the politician, who does not have a science background.
Inside the OSTP: Q&A With a Senior Science Policy Advisor
Shawna Williams | Apr 18, 2018
Sara Brenner discusses why she took a break from academia to join the White House’s Office of Science and Technology Policy, and what she hopes to accomplish there.
Women Less Successful When Applying for Patents
Diana Kwon | Apr 18, 2018
An investigation of 2.7 million patent submissions in the U.S. finds gender disparities throughout the application process.
The Second March for Science a Smaller Affair
Jim Daley, Ashley Yeager, Shawna Williams | Apr 14, 2018
Many cities around the globe, including Washington, DC, saw shrunken crowd sizes, and numerous events turned into rallies rather than processions.