Graphic: © Benjamin Fry, MIT |
The history of genetic studies offers multiple examples of poor planning, insensitivity to subjects, and illegible consent forms. Many times, it is scientifically necessary to name the populations studied to verify data and provide context. At those times, insensitivity can take on a political tone, and the politics can halt the research. "There's an increasing awareness that sometimes there are unintended political and social outcomes to such studies," says Dennis O'Rourke, a professor of anthropology at the University of Utah, who has participated in many genetic studies. "The more abuse and insensitivity there was in the past makes it that much more difficult to do this kind of work in the future."
Such concerns inform the new initiative to identify common human genetic haplotypes--the International Hap Map Project....