Discussion Good, Dumbocracy Bad

The voices of patient advocates can be electrifying. Consider the following examples: "I am one of the many millions of Americans who will benefit from biomedical research, made possible by the dollars that you appropriate. I view this invitation to testify as my opportunity to change the world. If I choose the right words, paint the right picture, I hope to give you not only a glimpse of what it's like to have a neurodegenerative disease, but also a sense of the staggering utter despair, fru

Written byRichard Gallagher
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The voices of patient advocates can be electrifying. Consider the following examples:

"I am one of the many millions of Americans who will benefit from biomedical research, made possible by the dollars that you appropriate. I view this invitation to testify as my opportunity to change the world. If I choose the right words, paint the right picture, I hope to give you not only a glimpse of what it's like to have a neurodegenerative disease, but also a sense of the staggering utter despair, frustration, and anger that accompanies such a diagnosis. But the intensity of those emotions pale in comparison to my feelings as I see a potential cure for my affliction dangled in front of me, only to see well-intentioned people limit our brilliant scientists from reaching that goal."1

"1. We all agree on supporting medical research to find cures and treatments--but not in ways that require ...

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