NIH to bank genome-wide association data

As of January 25, 2008, researchers conducting genome-wide association studies with NIH funding will be required to submit their data, stripped of information that could identify individual study participants, to the a linkurl:central repository;http://www.genome.gov/Pages/About/OD/OPG/GWASFR-082807.pdf at the National Library of Medicine. The database will allow researchers not connected with an original study to mine another lab?s data in search of further gene associations. linkurl:Plans;ht

Written byAlla Katsnelson
| 1 min read

Register for free to listen to this article
Listen with Speechify
0:00
1:00
Share
As of January 25, 2008, researchers conducting genome-wide association studies with NIH funding will be required to submit their data, stripped of information that could identify individual study participants, to the a linkurl:central repository;http://www.genome.gov/Pages/About/OD/OPG/GWASFR-082807.pdf at the National Library of Medicine. The database will allow researchers not connected with an original study to mine another lab?s data in search of further gene associations. linkurl:Plans;http://www.the-scientist.com/news/display/25033/ for such a database were announced last year ? researchers and patient advocacy groups supported the idea, but raised concerns about issues such as participant privacy and the effect on researchers? ability to publish or derive patents from the data. The final rules for submission encourage researchers and institutions to look into obtaining a special dispensation for confidentiality in cases where particularly sensitive data may be obtained for non-legal purposes (like law enforcement agencies or insurance companies). They also promise to provide guidance to ORBs in developing informed consent for study participants, which will necessarily become more complicated. And while the original draft plan stipulated a nine-month exclusivity period during which secondary researchers cannot publish based on the work, that period has been extended to 12 months in the final version. But with genome-wide studies getting published at an ever-increasing rate, complications around such issues are only likely to increase.
Interested in reading more?

Become a Member of

The Scientist Logo
Receive full access to more than 35 years of archives, as well as TS Digest, digital editions of The Scientist, feature stories, and much more!
Already a member? Login Here

Meet the Author

Share
December digest cover image of a wooden sculpture comprised of multiple wooden neurons that form a seahorse.
December 2025, Issue 1

Wooden Neurons: An Artistic Vision of the Brain

A neurobiologist, who loves the morphology of cells, turns these shapes into works of art made from wood.

View this Issue
Stacks of cell culture dishes, plates, and flasks with pink cell culture medium on a white background.

Driving Innovation with Cell Culture Essentials

Merck
Stacks of cell culture dishes, plates, and flasks with pink cell culture medium on a white background.

Driving Innovation with Cell Culture Essentials

MilliporeSigma purple logo
Abstract wireframe sphere with colorful dots and connecting lines representing the complex cellular and molecular interactions within the tumor microenvironment.

Exploring the Inflammatory Tumor Microenvironment 

Cellecta logo
An image of a DNA sequencing spectrum with a radial blur filter applied.

A Comprehensive Guide to Next-Generation Sequencing

Integra Logo

Products

brandtech logo

BRANDTECH® Scientific Announces Strategic Partnership with Copia Scientific to Strengthen Sales and Service of the BRAND® Liquid Handling Station (LHS) 

Top Innovations 2026 Contest Image

Enter Our 2026 Top Innovations Contest

Biotium Logo

Biotium Expands Tyramide Signal Amplification Portfolio with Brighter and More Stable Dyes for Enhanced Spatial Imaging

Labvantage Logo

LabVantage Solutions Awarded $22.3 Million U.S Customs and Border Protection Contract to Deliver Next-Generation Forensic LIMS