fund raising

Rarity is a strength, not a weakness, when lessons learned from rare disease patients buoy research and development to find cures for more common diseases.

In chapter 4, “Building a Cure Machine,” author Victoria Jackson reveals the challenges in launching a foundation focused on funding research on a rare disease.

Meet the family seeking to fund research into a rare disease that afflicts their two boys.

Watch the viral video that helped the family of a child with Sanfilippo syndrome raise more than $2 million.