Tracking genes and disease

Plans to establish a UK gene bank reopen the debates on data transparency and patient confidentiality.

Written byPat Hagan
| 4 min read

Register for free to listen to this article
Listen with Speechify
0:00
4:00
Share

LONDON — Trust that between patients and their doctors could be severely undermined by the plans to set up Biobank UK — a national genetic library of DNA from over half-a-million people, GeneWatch UK has warned.

GeneWatch UK, an independent organization that monitors the ethics and risks of genetic engineering, has suggested that public trust in the medical profession could be 'severely damaged' if — as it fears — patients end up being harmed rather than helped by the project. The organization is concerned that proper legal safeguards are not being put in place to prevent commercial interests — such as employers and insurers — exploiting the information contained in the genetic library for their own financial benefit.

At the very least, GeneWatch UK wants stringent measures put in place before Biobank UK even gets off the ground. Better still, it argues that there should be a national debate about ...

Interested in reading more?

Become a Member of

The Scientist Logo
Receive full access to more than 35 years of archives, as well as TS Digest, digital editions of The Scientist, feature stories, and much more!
Already a member? Login Here

Meet the Author

Share
December digest cover image of a wooden sculpture comprised of multiple wooden neurons that form a seahorse.
December 2025, Issue 1

Wooden Neurons: An Artistic Vision of the Brain

A neurobiologist, who loves the morphology of cells, turns these shapes into works of art made from wood.

View this Issue
Stacks of cell culture dishes, plates, and flasks with pink cell culture medium on a white background.

Driving Innovation with Cell Culture Essentials

Merck
Stacks of cell culture dishes, plates, and flasks with pink cell culture medium on a white background.

Driving Innovation with Cell Culture Essentials

MilliporeSigma purple logo
Human iPSC-derived Models for Brain Disease Research

Human iPSC-derived Models for Neurodegenerative Disease Research

Fujifilm
Abstract wireframe sphere with colorful dots and connecting lines representing the complex cellular and molecular interactions within the tumor microenvironment.

Exploring the Inflammatory Tumor Microenvironment 

Cellecta logo

Products

Beckman Logo

Beckman Coulter Life Sciences Introduces the Biomek i3 Benchtop Liquid Handler, a Small but Mighty Addition to its Portfolio of Automated Workstations

brandtech logo

BRANDTECH® Scientific Announces Strategic Partnership with Copia Scientific to Strengthen Sales and Service of the BRAND® Liquid Handling Station (LHS) 

Top Innovations 2026 Contest Image

Enter Our 2026 Top Innovations Contest

Biotium Logo

Biotium Expands Tyramide Signal Amplification Portfolio with Brighter and More Stable Dyes for Enhanced Spatial Imaging