PIXABAY, EDAR
Two online tools that aim to recruit volunteers to freely share their genetic and health data with researchers and Facebook friends have launched in the past week.
The online platform Open Humans Network launched last week (March 24) with three starter projects. Clinical data collected from participating volunteers will be open to any interested researcher, not just the leader of each project. Unlike traditional medical studies, each sample will be tied to the name of the volunteer who provided it, allowing researchers unaffiliated with the initial project to contact participants for follow-up studies. “You become a richer resource if your data are shared among as many scientists as possible,” project director Jason Bobe told Reuters.
Open Humans participants must pass a test acknowledging the risks ...
