patient data
Patient Registries to Bolster Cell- and Gene-Therapy Clinical Trial Data
Patient Registries to Bolster Cell- and Gene-Therapy Clinical Trial Data
Anna Azvolinsky | May 15, 2018
As the first personalized cell and gene therapies are approved from small clinical trials, researchers propose the creation of publicly accessible databases to pull together real-world results.  
The Challenges of Rare-Disease Research
The Challenges of Rare-Disease Research
Jyoti Madhusoodanan | Sep 1, 2016
With few resources and hesitant investors, basic scientists must rely on clinicians, patient advocates, and their own keen eye for biological connections.
Cancer Be Damned
Cancer Be Damned
Bob Grant | Apr 1, 2016
Teenager Lauren Bendesky turned her cancer diagnosis on its head, using herself as a research subject to test potential therapies.
Clinical Silence
Clinical Silence
Abby Olena | Oct 10, 2013
A study has shown that less than half of the outcomes of some clinical trials are publicly available.
Pharma Moves Toward Transparency
Pharma Moves Toward Transparency
Chris Palmer | Jul 29, 2013
The pharmaceutical industry has agreed to share data from clinical trials with researchers, patients, and the public.
Global Alliance to Share Genomic Data
Global Alliance to Share Genomic Data
Dan Cossins | Jun 10, 2013
Leading medical and research centers around the world announce a plan to share massive amounts of genetic and clinical information.
Building a Better Network
Building a Better Network
Jef Akst | Apr 23, 2013
NIH Director Francis Collins and colleagues announce plans to create a health-care research network to connect patients, doctors, and clinical researchers.
Opinion: Text Mining in the Clinic
Opinion: Text Mining in the Clinic
Min Song | Apr 1, 2013
Despite increasing use of electronic medical records, much patient data remains in text form, requiring text-mining techniques to make full use of patient information.
Opinion:  Unconventional Standards
Opinion: Unconventional Standards
Effy Vayena | Mar 13, 2013
Tailoring ethical oversight to participant-led research
Networking Medicine
Networking Medicine
Jef Akst | Mar 2, 2013
Although fully organized patient-run trials are still few and far between, patients are taking a more active role in clinical research.