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How to Bring the Public into the Scientific Process
A new wave of research is recruiting patients and other members of the public to serve as equal partners, bringing fresh perspectives to research on diseases and other conditions.
How to Bring the Public into the Scientific Process
How to Bring the Public into the Scientific Process

A new wave of research is recruiting patients and other members of the public to serve as equal partners, bringing fresh perspectives to research on diseases and other conditions.

A new wave of research is recruiting patients and other members of the public to serve as equal partners, bringing fresh perspectives to research on diseases and other conditions.

patient data

A photo of Rose Kidd, the president of Global Operations Delivery at ICON.
Advancing Clinical Research Through Effective Data Delivery
The Scientist and ICON | Apr 11, 2024 | 3 min read
Novel data collection and delivery strategies help usher the clinical research industry into its next era.
EXCLUSIVE
Assorted pills and tablets
Frontiers Pulls Special COVID-19 Issue After Content Dispute
Catherine Offord | Apr 28, 2021 | 8 min read
The issue’s guest editors resign after falling out with the publisher over the management of papers, including a rejected manuscript on ivermectin, that were submitted for a special issue on drug repurposing for COVID-19.
Immune Biomarkers Tied to Severe COVID-19: Study
Ruth Williams | Aug 19, 2020 | 4 min read
Increases in the levels of three cytokines are among the features linked to poor outcomes.
Data Sharing in Action: When Drug Companies Open Their Trial Vaults
Abby Olena, PhD | Dec 3, 2018 | 5 min read
YODA, a program facilitated by Yale University researchers, has successfully distributed clinical trial records from Johnson & Johnson and Medtronic to external researchers since 2013.
Patient Registries to Bolster Cell- and Gene-Therapy Clinical Trial Data
Anna Azvolinsky | May 15, 2018 | 3 min read
As the first personalized cell and gene therapies are approved from small clinical trials, researchers propose the creation of publicly accessible databases to pull together real-world results.  
The Challenges of Rare-Disease Research
Jyoti Madhusoodanan | Sep 1, 2016 | 8 min read
With few resources and hesitant investors, basic scientists must rely on clinicians, patient advocates, and their own keen eye for biological connections.
Cancer Be Damned
Bob Grant | Apr 1, 2016 | 4 min read
Teenager Lauren Bendesky turned her cancer diagnosis on its head, using herself as a research subject to test potential therapies.
Clinical Silence
Abby Olena, PhD | Oct 10, 2013 | 2 min read
A study has shown that less than half of the outcomes of some clinical trials are publicly available.
Pharma Moves Toward Transparency
Chris Palmer | Jul 29, 2013 | 2 min read
The pharmaceutical industry has agreed to share data from clinical trials with researchers, patients, and the public.
Global Alliance to Share Genomic Data
Dan Cossins | Jun 10, 2013 | 2 min read
Leading medical and research centers around the world announce a plan to share massive amounts of genetic and clinical information.
Building a Better Network
Jef Akst | Apr 23, 2013 | 2 min read
NIH Director Francis Collins and colleagues announce plans to create a health-care research network to connect patients, doctors, and clinical researchers.
Opinion: Text Mining in the Clinic
Min Song | Apr 1, 2013 | 3 min read
Despite increasing use of electronic medical records, much patient data remains in text form, requiring text-mining techniques to make full use of patient information.
Opinion: Unconventional Standards
Effy Vayena | Mar 13, 2013 | 4 min read
Tailoring ethical oversight to participant-led research
Networking Medicine
Jef Akst | Mar 1, 2013 | 2 min read
Although fully organized patient-run trials are still few and far between, patients are taking a more active role in clinical research.
Do-It-Yourself Medicine
Jef Akst | Mar 1, 2013 | 10+ min read
Patients are sidestepping clinical research and using themselves as guinea pigs to test new treatments for fatal diseases. Will they hurt themselves, or science?
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