Illustration of scientists collaborating
How to Bring the Public into the Scientific Process
A new wave of research is recruiting patients and other members of the public to serve as equal partners, bringing fresh perspectives to research on diseases and other conditions.
ABOVE: MODIFIED FROM © ISTOCK.COM, ELIZALIV
How to Bring the Public into the Scientific Process
How to Bring the Public into the Scientific Process

A new wave of research is recruiting patients and other members of the public to serve as equal partners, bringing fresh perspectives to research on diseases and other conditions.

A new wave of research is recruiting patients and other members of the public to serve as equal partners, bringing fresh perspectives to research on diseases and other conditions.

ABOVE: MODIFIED FROM © ISTOCK.COM, ELIZALIV
patient data
EXCLUSIVE
Assorted pills and tablets
Frontiers Pulls Special COVID-19 Issue After Content Dispute
Catherine Offord | Apr 28, 2021
The issue’s guest editors resign after falling out with the publisher over the management of papers, including a rejected manuscript on ivermectin, that were submitted for a special issue on drug repurposing for COVID-19.
Immune Biomarkers Tied to Severe COVID-19: Study
Ruth Williams | Aug 19, 2020
Increases in the levels of three cytokines are among the features linked to poor outcomes.
Data Sharing in Action: When Drug Companies Open Their Trial Vaults
Abby Olena | Dec 3, 2018
YODA, a program facilitated by Yale University researchers, has successfully distributed clinical trial records from Johnson & Johnson and Medtronic to external researchers since 2013.
Patient Registries to Bolster Cell- and Gene-Therapy Clinical Trial Data
Anna Azvolinsky | May 15, 2018
As the first personalized cell and gene therapies are approved from small clinical trials, researchers propose the creation of publicly accessible databases to pull together real-world results.  
The Challenges of Rare-Disease Research
Jyoti Madhusoodanan | Sep 1, 2016
With few resources and hesitant investors, basic scientists must rely on clinicians, patient advocates, and their own keen eye for biological connections.
Cancer Be Damned
Bob Grant | Apr 1, 2016
Teenager Lauren Bendesky turned her cancer diagnosis on its head, using herself as a research subject to test potential therapies.
Clinical Silence
Abby Olena | Oct 10, 2013
A study has shown that less than half of the outcomes of some clinical trials are publicly available.
Pharma Moves Toward Transparency
Chris Palmer | Jul 29, 2013
The pharmaceutical industry has agreed to share data from clinical trials with researchers, patients, and the public.
Global Alliance to Share Genomic Data
Dan Cossins | Jun 10, 2013
Leading medical and research centers around the world announce a plan to share massive amounts of genetic and clinical information.
Building a Better Network
Jef Akst | Apr 23, 2013
NIH Director Francis Collins and colleagues announce plans to create a health-care research network to connect patients, doctors, and clinical researchers.
Opinion: Text Mining in the Clinic
Min Song | Apr 1, 2013
Despite increasing use of electronic medical records, much patient data remains in text form, requiring text-mining techniques to make full use of patient information.
Opinion: Unconventional Standards
Effy Vayena | Mar 13, 2013
Tailoring ethical oversight to participant-led research
Networking Medicine
Jef Akst | Mar 1, 2013
Although fully organized patient-run trials are still few and far between, patients are taking a more active role in clinical research.
Do-It-Yourself Medicine
Jef Akst | Mar 1, 2013
Patients are sidestepping clinical research and using themselves as guinea pigs to test new treatments for fatal diseases. Will they hurt themselves, or science?