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Patient Registries to Bolster Cell- and Gene-Therapy Clinical Trial Data
Anna Azvolinsky | May 15, 2018
As the first personalized cell and gene therapies are approved from small clinical trials, researchers propose the creation of publicly accessible databases to pull together real-world results.
The Challenges of Rare-Disease Research
Jyoti Madhusoodanan | Sep 1, 2016
With few resources and hesitant investors, basic scientists must rely on clinicians, patient advocates, and their own keen eye for biological connections.
Cancer Be Damned
Bob Grant | Apr 1, 2016
Teenager Lauren Bendesky turned her cancer diagnosis on its head, using herself as a research subject to test potential therapies.
Abby Olena | Oct 10, 2013
A study has shown that less than half of the outcomes of some clinical trials are publicly available.
Pharma Moves Toward Transparency
Chris Palmer | Jul 29, 2013
The pharmaceutical industry has agreed to share data from clinical trials with researchers, patients, and the public.
Global Alliance to Share Genomic Data
Dan Cossins | Jun 10, 2013
Leading medical and research centers around the world announce a plan to share massive amounts of genetic and clinical information.
Building a Better Network
Jef Akst | Apr 23, 2013
NIH Director Francis Collins and colleagues announce plans to create a health-care research network to connect patients, doctors, and clinical researchers.
Opinion: Text Mining in the Clinic
Min Song | Apr 1, 2013
Despite increasing use of electronic medical records, much patient data remains in text form, requiring text-mining techniques to make full use of patient information.
Opinion: Unconventional Standards
Effy Vayena | Mar 13, 2013
Tailoring ethical oversight to participant-led research
Jef Akst | Mar 2, 2013
Although fully organized patient-run trials are still few and far between, patients are taking a more active role in clinical research.