ABOVE: ©ISTOCK.COM, MATEJMO
Clinical trials generate tons of data that never see the light of day, but an initiative spearheaded by researchers at Yale University is trying to change that. Since 2011, the Yale University Open Data Access (YODA) Project has developed a platform that allows external researchers to gain access to clinical trials data from pharmaceutical companies. Last week (November 27) in Scientific Data, collaborators published their analysis of YODA’s successes and challenges so far.
“It’s nice to have a summary of YODA, which has been one of the leaders of data sharing platforms that have emerged over the past five-plus years,” says Mark Huffman, a cardiologist at Northwestern University who did not participate in the study, but has used the YODA platform to access data from a Johnson & Johnson trial. The authors “help identify some opportunities for how data sharing can move forward using this particular model.”
...
