Chronic Fatigue Syndrome Reframed

To more accurately reflect the condition, the Institute of Medicine recommends renaming it systemic exertion intolerance disease.

Written byKerry Grens
| 2 min read

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WIKIMEDIA, SEATTLE MUNICIPAL ARCHIVESChronic fatigue syndrome is a fairly apt description of what sufferers endure, but an Institute of Medicine (IOM) panel suggests a redefinition. Along with new diagnostic criteria, the experts offer a new name: systemic exertion intolerance disease (SEID).

“This name captures a central characteristic of the disease: the fact that exertion of any sort—physical, cognitive, or emotional—can adversely affect patients in many organ systems and in many aspects of their lives,” the committee members, chaired by Ellen Wright Clayton of Vanderbilt University Medical Center, wrote in a summary of their report.

The new diagnostic criteria include an impairment in participating in normal activities for at least six months; unrefreshing sleep; “post-exertional malaise”; and cognitive impairments or a worsening of symptoms that can be relieved by lying down. Such specifics “will in the end get more people cared for and treated,” Peter Rowe, a committee member, pediatrician, and chronic-fatigue expert at Johns Hopkins Children’s Center, told Nature News.

The changes are not universally welcomed ...

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  • kerry grens

    Kerry served as The Scientist’s news director until 2021. Before joining The Scientist in 2013, she was a stringer for Reuters Health, the senior health and science reporter at WHYY in Philadelphia, and the health and science reporter at New Hampshire Public Radio. Kerry got her start in journalism as a AAAS Mass Media fellow at KUNC in Colorado. She has a master’s in biological sciences from Stanford University and a biology degree from Loyola University Chicago.

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