genetic privacy

Agencies such as the NIH reward the discovery of vulnerabilities in their computer systems—before criminals can exploit them.

A security researcher found the email addresses and encrypted passwords of more than 92 million users of the genealogy site on a private server outside the company.

Luna DNA, Nebula Genomics, and other “bio-brokers” will allow customers to make money by granting access to their genetic and personal information for research purposes.

The tool cannot predict a person’s face from DNA, say researchers—including some listed as coauthors on the publication. 

Eugene Garfield, the cancer moonshot, employee genetic testing, and more

December 2015's selection of notable quotes

The genomic entrepreneur has struck a deal with a South African health insurer to sequence the exomes of its customers.

Researchers identify people by the unique combinations of microbes found in and on their bodies.

Updated guidelines expand upon existing policy to include more kinds of data. 

Four UK research funding agencies firm up their stance against deliberate attempts by researchers to re-identify supposedly anonymous study participants.

While genomic data sharing is essential for research, scientists must work to keep sensitive, potentially damaging information under wraps.

July 2013's selection of notable quotes

Researchers and bioethicists need to take advantage of events such as the recent publication of the HeLa genome to engage the public on topics of privacy, biobank regulation, and more.

A company has been ordered to stop estimating Icelanders’ genotypes and linking them to hospital records.

The names and addresses of people participating in the Personal Genome Project can be easily tracked down despite such data being left off their online profiles.

European scientists have taken down the HeLa genome after publishing it without the consent of Henrietta Lacks’s family.

US scientists struggle to complete studies in Ecuador in the wake of biopiracy accusations.

Long-term, life, and disability insurers may still be able to deny coverage to patients with a genetic disease, under current nondiscrimination legislation.

A new report lays out the pitfalls of consumer genetics and suggested strategies for safeguarding DNA’s privacy.