Researchers and bioethicists need to take advantage of events such as the recent publication of the HeLa genome to engage the public on topics of privacy, biobank regulation, and more.

July 2013's selection of notable quotes

A company has been ordered to stop estimating Icelanders’ genotypes and linking them to hospital records.

The names and addresses of people participating in the Personal Genome Project can be easily tracked down despite such data being left off their online profiles.

European scientists have taken down the HeLa genome after publishing it without the consent of Henrietta Lacks’s family.

US scientists struggle to complete studies in Ecuador in the wake of biopiracy accusations.

Long-term, life, and disability insurers may still be able to deny coverage to patients with a genetic disease, under current nondiscrimination legislation.

A new report lays out the pitfalls of consumer genetics and suggested strategies for safeguarding DNA’s privacy.  

Members of the Personal Genome Project have created software aimed at helping researchers tease apart genetic differences between individuals.