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Debating Bioethics Openly
Declan Fahy & Matthew C. Nisbet | Jul 1, 2013
Researchers and bioethicists need to take advantage of events such as the recent publication of the HeLa genome to engage the public on topics of privacy, biobank regulation, and more.
Speaking of Science
Staff | Jul 1, 2013
July 2013's selection of notable quotes
Nordic Gene Study Requires Consent
Kate Yandell | Jun 24, 2013
A company has been ordered to stop estimating Icelanders’ genotypes and linking them to hospital records.
“Anonymous” Genomes Identified
Dan Cossins | May 3, 2013
The names and addresses of people participating in the Personal Genome Project can be easily tracked down despite such data being left off their online profiles.
Privacy and the HeLa Genome
Kate Yandell | Mar 26, 2013
European scientists have taken down the HeLa genome after publishing it without the consent of Henrietta Lacks’s family.
Beth Marie Mole | Feb 20, 2013
US scientists struggle to complete studies in Ecuador in the wake of biopiracy accusations.
Some Insurers Protected by GINA
Edyta Zielinska | Jan 23, 2013
Long-term, life, and disability insurers may still be able to deny coverage to patients with a genetic disease, under current nondiscrimination legislation.
Preventing Genetic Identity Theft
Beth Marie Mole | Oct 11, 2012
A new report lays out the pitfalls of consumer genetics and suggested strategies for safeguarding DNA’s privacy.
New Genome Resource
Edyta Zielinska | Jul 11, 2012
Members of the Personal Genome Project have created software aimed at helping researchers tease apart genetic differences between individuals.