genomic data sharing

Scientists are working to maximize the benefits and minimize the costs of sharing.

Nebula Genomics is among the first blockchain-based companies to reward users for contributing personal data for research.

EncrypGen will enable individuals to sell their deidentified data for research.

The nationwide experiment will initially include around 100,000 volunteers.

Combining genomic, clinical, and patient-reported data, the Metastatic Breast Cancer Project provides a unique resource for the cancer community.

Sorting out which data sets are clinical-grade is key to helping patients.

From tossing out cross-contaminated cell lines to flagging genomic misnomers, a push is on to tidy up biomedical research.

Personalized interpretation is the next frontier in clinical genomics, but we won’t get there without sharing data representing all ethnic groups.

As the number of Ebola cases declines, Chimerix is unable to recruit enough patients for its trial in Liberia testing the antiviral drug brincidofovir.

Updated guidelines expand upon existing policy to include more kinds of data.