Researchers Team Up with Patients to Build a Breast Cancer Database

Combining genomic, clinical, and patient-reported data, the Metastatic Breast Cancer Project provides a unique resource for the cancer community.

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LYING DOWN FOR A CAUSE: Cancer patients and research advocates, among them Lisa Quinn, stage a “Die In” at the Stage IV Stampede in Washington, D.C., on October 13, 2017.PATRICK QUINN

Last October, after a hectic couple of days campaigning for metastatic breast cancer awareness and research funding in Washington, D.C., Lisa Quinn boarded an RV owned by the advocacy group METAvivor for a road trip up the East Coast. The stay-at-home mom from northwest Arkansas was diagnosed with stage IV breast cancer in July 2015 at age 36, and in 2016, she had donated saliva and blood samples, along with her clinical data and information about her disease, to the Metastatic Breast Cancer Project (MBCproject).

Launched by the Broad Institute of MIT and Harvard University in October 2015, the MBCproject aimed to collect patient-donated samples from which to extract molecular and genomic information on metastatic breast cancer, pairing those data with clinical records and patient-reported ...

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Meet the Author

  • Jef Akst

    Jef Akst was managing editor of The Scientist, where she started as an intern in 2009 after receiving a master’s degree from Indiana University in April 2009 studying the mating behavior of seahorses.

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