Combining genomic, clinical, and patient-reported data, the Metastatic Breast Cancer Project provides a unique resource for the cancer community.

The legislation removes restrictions for seriously ill patients to access experimental treatments that have not received FDA approval.

With few resources and hesitant investors, basic scientists must rely on clinicians, patient advocates, and their own keen eye for biological connections.

The change should allow patients with fatal illnesses easier access to experimental drugs, but gaining permission from drug companies remains the biggest challenge.

Researchers pinpoint the source of the current Ebola outbreak in West Africa to 2-year-old boy who died in southern Guinea.

The ALS Association has raised more than $100 million in donations through a charity campaign that went viral. How should that money be spent?

Tailoring ethical oversight to participant-led research

Although fully organized patient-run trials are still few and far between, patients are taking a more active role in clinical research.

Patients are sidestepping clinical research and using themselves as guinea pigs to test new treatments for fatal diseases. Will they hurt themselves, or science?