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Company Offers Free Whole-Genome Sequencing for Data Sharers

Nebula Genomics is among the first blockchain-based companies to reward users for contributing personal data for research.

Written byShawna Williams
| 2 min read

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Fifteen years ago, the first sequencing of a human genome was declared complete, at a cost of about $2.7 billion. While the price tag for whole-genome sequencing has fallen considerably since then, it’s still far less affordable than typical direct-to-consumer genetic tests, which analyze hundreds of thousands of telling sites in the genome, rather than sifting through all 3 billion of its base pairs. A platform, announced by the company Nebula Genomics, now aims to change that by connecting individuals with researchers who will pay for the genome sequencing in exchange for a look at the results.

“This is the first step in realizing a world in which individuals control and are compensated for use of their genetic data by medical researchers,” Nebula cofounder George Church, who is also a geneticist at Harvard Medical School and MIT, says in a press release sent to The Scientist. ...

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Meet the Author

  • Shawna was an editor at The Scientist from 2017 through 2022. She holds a bachelor’s degree in biochemistry from Colorado College and a graduate certificate in science communication from the University of California, Santa Cruz. Previously, she worked as a freelance editor and writer, and in the communications offices of several academic research institutions. As news director, Shawna assigned and edited news, opinion, and in-depth feature articles for the website on all aspects of the life sciences. She is based in central Washington State, and is a member of the Northwest Science Writers Association and the National Association of Science Writers.

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