privacy
Funders Fight Re-Identification
Funders Fight Re-Identification
Tracy Vence | Mar 25, 2014
Four UK research funding agencies firm up their stance against deliberate attempts by researchers to re-identify supposedly anonymous study participants.
Proceed with Caution
Proceed with Caution
Mark Gerstein and Dov Greenbaum | Oct 1, 2013
While genomic data sharing is essential for research, scientists must work to keep sensitive, potentially damaging information under wraps.
Debating Bioethics Openly
Debating Bioethics Openly
Declan Fahy & Matthew C. Nisbet | Jul 1, 2013
Researchers and bioethicists need to take advantage of events such as the recent publication of the HeLa genome to engage the public on topics of privacy, biobank regulation, and more.
“Anonymous” Genomes Identified
“Anonymous” Genomes Identified
Dan Cossins | May 3, 2013
The names and addresses of people participating in the Personal Genome Project can be easily tracked down despite such data being left off their online profiles.
Government Revises Financial Disclosure Rules
Government Revises Financial Disclosure Rules
Edyta Zielinska | Apr 18, 2013
Researchers welcome a new ruling saying that financial holdings will no longer need to be published in an online database.
Privacy and the HeLa Genome
Privacy and the HeLa Genome
Kate Yandell | Mar 26, 2013
European scientists have taken down the HeLa genome after publishing it without the consent of Henrietta Lacks’s family.
BP Subpoenas Scientist Emails
Hayley Dunning | Jun 5, 2012
Researchers who studied the Deep Water Horizon disaster have handed over 3,000 internal documents and emails to BP as part of the lawsuit that seeks damages from the oil company.
Illegal Genes
Bob Grant | Apr 30, 2012
California mulls a state law that would criminalize the unauthorized sharing, storing, or analyzing of genetic data.