NIH Plans to Enroll 1 Million People for Health Database

The agency says it has taken various steps to ensure the privacy of participants’ data.

Written byCatherine Offord
| 2 min read

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ISTOCK, PEOPLEIMAGESThe National Institutes of Health (NIH) is planning to enroll 1 million people across the U.S. for a database of genetics, lifestyles, and environmental conditions relating to health. The agency’s “All of Us” program, which will open for volunteer signup on Sunday (May 6), will provide an important tool in the development of treatment and prevention strategies for various diseases, health officials say.

All of Us is an ambitious project that has the potential to revolutionize how we study disease and medicine,” Health and Human Services Secretary Alex Azar says in a statement. “We look forward to working with people of all backgrounds to take this major step forward for our nation’s health.”

The project has secured $1.45 billion in funding for the next decade, and has already enrolled 25,000 participants as part of a pilot run last year. People will first share electronic health records, blood samples, and information about their lifestyles. Later in the year, researchers will start administering tests for particular genetic variants that may be related to disease risk.

Now that enrollment is going public, the agency is keen to assuage concerns about the ...

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  • After undergraduate research with spiders at the University of Oxford and graduate research with ants at Princeton University, Catherine left arthropods and academia to become a science journalist. She has worked in various guises at The Scientist since 2016. As Senior Editor, she wrote articles for the online and print publications, and edited the magazine’s Notebook, Careers, and Bio Business sections. She reports on subjects ranging from cellular and molecular biology to research misconduct and science policy. Find more of her work at her website.

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